Job Description

Director, Health Policy Remote__

Our client, The American Parkinson Disease Association (APDA) has created a new Division of Public Policy & Advocacy and is seeking a Director of Health Policy. The Director is responsible for monitoring, analyzing, and responding to the evolving federal regulatory landscape related to Parkinson’s Disease and related neurodegenerative disorder.

ABOUT APDA

Every day, the American Parkinson Disease Association (APDA) provides the support, education, and research that will help everyone impacted by Parkinson’s disease (PD) live life to the fullest. APDA is a nationwide grassroots network dedicated to fighting PD and works tirelessly to help the approximately one million people living with PD in the United States in the face of this chronic, neurological disorder. Founded in 1961, APDA provides outstanding patient services and educational programs, elevates public awareness about the disease, and supports research designed to unlock the mysteries of PD and ultimately put an end to this disease.

OUR CORE VALUES

• COMMITMENT: Compassionately provide high quality service and support.
• RESPECT: Foster a diverse, equitable, inclusive, and accessible culture.
• COLLABORATION: Establish meaningful relationships to build strong, supportive communities.
• INTEGRITY: Act ethically with honesty, transparency, and accuracy.
• ACCOUNTABILITY: Responsibly steward our actions, outcomes, and resources.

KEY RESPONSIBILITIES

To perform this job successfully, an individual must be able to perform each essential duty and responsibility satisfactorily. Other duties may be assigned to meet business needs.

• Serve as senior policy strategist and liaison to federal agencies, advancing policy and programmatic outcomes associated with Parkinson’s Disease.
• Proactively monitor federal health regulations, and policy initiatives issued by federal agencies including but not limited to HHS, NIH, FDA, DOD, and VA.
• Stay abreast of emerging trends, policy debates, and potential threats to inform strategic planning and risk mitigation efforts.
• Develop high-quality written materials, including policy briefs, white papers, comment letters, reports, advocacy materials, and presentations, to inform and engage various audiences, including policymakers, coalition partners, and the public.
• Engage in multi-agency partnerships on initiatives that align with the APDA’s mission.
• Represent the APDA at national scientific and policy forums, strengthening relationships with stakeholders in the neurodegenerative disorders space.
• Contribute to the development of the organization's federal policy agenda and long-term planning.

SKILLS AND ATTRIBUTES

• Senior leadership roles within federal agencies (HHS, CMS, NIH, etc.) or major health policy organizations.
• Oversight of high-impact programs and large-scale federal funding initiatives.
• Development of national initiatives and strategies addressing complex chronic and neurodegenerative conditions.
• Commitment to the mission and values of APDA, familiarity with Parkinson’s Disease and other neurodegenerative disorders, and a strong understanding of health-related public policy issues
• A proven ability to work independently (exhibiting leadership qualities) and to develop strong internal work relationships and collaborate in a team setting as well.
• Ability to travel as needed and work flexible hours to accommodate advocacy and legislative activities.

QUALIFICATIONS

• 10+ years of progressive leadership in federal health policy or public health strategy
• Proven success engaging with Administration officials, federal advisory councils, and engaging directly with Members of Congress.
• Demonstrated track record in developing and implementing partnerships that drive measurable impact.
• Exceptional skills in translating complex scientific data into compelling, actionable recommendations for policymakers.
• Advanced degree in public health or health policy preferred.

WORKING CONDITIONS

This is a fully remote position; however, travel may be required approximately 20% of the time.

SKILLS AND BENEFITS:

• Starting Salary Range: $110,000 to $115,000. Annual salary based on background and experience.
• American Parkinson Disease Association also provides an attractive benefits package that includes medical, dental and vision insurance, retirement plan, and generous paid time off in addition to standard holidays.

Have we described a role that you have been seeking, along with a set of skills you possess? If so, we’d like to hear from you! Please forward your cover letter and resume to : michelle_kolev@ajg.com

American Parkinson Disease Association (APDA) provides equal employment opportunities to all employees and applicants without regard to race, color, religion, sex, national origin, age, disability, or genetics. APDA complies with applicable state and local laws governing nondiscrimination in employment. This policy applies to all terms and conditions of employment, including recruiting, hiring, placement, promotion, termination, layoff, recall, transfer, leave of absence, compensation, and training. APDA expressly prohibits any form of workplace harassment based on race, color, religion, gender, sexual orientation, gender identity or expression, national origin, age, genetic information, disability, or veteran status. Improper interference with the ability of APDA’s employees to perform their job duties may result in discipline up to and including discharge. APDA will provide reasonable accommodation for qualified individuals with disabilities.

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